Though some people may live for several years, your friends doctors will have a better idea on what things look like in her individual case, based on the type of cancer, where it is and how aggressive it is, and the response to treatments. Which to me is unrealistic given her condition. Aside from losing too much weight, the doctor doesn't seem concerned. Although the doctor puts on a polite facade, she seems to ignore the things that to me, are signs of the end of life and I am left feeling like I have no resources and no options. Her doctors, on the other hand, seem to believe that if she just stays in a positive mindset, she could see 2-10 years. She did a wonderful job given the circumstances, and when my parents inevitably divorced, I chose to stay with her full time. I have spent years caring for her in different ways with her PTSD and depression issues. My mom is very good a hiding her symptoms/how she is really feeling/acting when the doctor calls. I quickly realized this would continue on for what she has left of her life, for me to handle. Log In Sign Up. She'd like to know how long she has, but one Oncologist said it can be 9 months, and another said 2-10 years. Can birth control pills cause cancer? It’s terrible. I try not to blame him for his lack of availability and willingness to help, but I can openly admit that I feel frustrated at him for not doing more. Blood tests might show some but I don't think any breast cancers show up in the blood. "Nearly 40,000 women and men die every year, and that number hasn't changed in two decades." Not much help, I know, but it's all I can offer. For some people (me) metastatic breast cancer is more like a chronic illness than a death sentence. If the metastatic breast cancer started as an earlier-stage breast cancer, you can ask whether the cancer cells should be tested for characteristics such as hormone receptors and HER2 receptors in case they are different from the primary breast cancer. I am 26, a first time home buyer, hoping to continue on with life as expected for someone my age, and I am struggling to do so given what I feel is science vs spirit. Upon diagnosis, we had a rough initial week. She has been my rock growing up, always proud, always boastful. Several years ago, the Metastatic Breast Cancer Alliance did a study that found that of all research grants, financed by significant public and private sources from 2006-2013, just 7% of funds studied metastatic breast cancer, even though metastasis is the thing that causes breast cancer to become dangerous disease. The cells have not formed tumors and … Press J to jump to the feed. Purpose. User account menu. The anthracyclines (doxorubicin, epirubicin) and the taxanes (paclitaxel, docetaxel) are considered the most active agents for patients with advanced breast cancer. I am so very sorry that your mother, you, and your family are going through this. We have got a 2nd opinion and we have checked and the cancer has spread everywhere. ( For example, I am on tamoxifen. She was given access to a palliative care doctor to help manage her pain, which to say the least, I have not been impressed with. Metastatic breast cancer is the most advanced stage of breast cancer, also popularly referred to as breast cancer stage IV.There are five stages of breast cancer from step 0 where the breast cancer cells have not affected the lymph nodes. I had a mastectomy, did 6 rounds of chemo and a year of a drug called herceptin. Sorry for the long post. Financial toxicity due to the direct out‐of‐pocket costs of care is central to patients' value equation, 1-3 yet indirect costs, such as time spent receiving care, are understudied. I think the stress got to her, and a few days were spent hopping in an ambulance to the hospital as she was in so much pain she could not wait for me to drive her. Chemotherapy plays an important role in the management of metastatic breast cancer. The Internet is full of people who can't tolerate it. We examined a large dataset of female metastatic breast cancers (MBCs) profiled with comprehensive genomic profiling (CGP) to identify the prevalence and distribution of immunotherapy responsiveness‐associated biomarkers. Can stage 4 be controlled? The primary goals of treatment focus on palliation of symptoms and improvement in overall survival (OS). Please read. Otherwise she is on an oral hormone, and oral hydromorph twice a day. Starting your periods early can be another increased risk. The estrogen blocking drugs can actually be very powerful cancer supressors in estrogen receptor positive cancer and some people with brain metastasis benefit significantly from brain radiation. I am a 26-year-old originally from Ontario, Canada, recently moved to Quebec with my boyfriend and mother in tow. This study investigated the incidence, radiographic patterns and relevance to clinical outcome of everolimus‐related pneumonitis (ERP) in metastatic breast cancer (MBC) patients. I was diagnosed with metastatic breast cancer in April. She has only met my mom twice in person since her diagnoses which is difficult too. For any other decision it doesn't really help or mean anything because they lump all the different types of cancer together and there are many different types of breast cancer and the statistics don't yet include the latest drugs, etc etc. About half of the patients with skeletal metastases developed femoral involvement, usually bilateral. Today I had my first appointment with the oncologist who, contingent on the results of additional tests, has recommended … There is a support forum over at community.breastcancer.org for those affected by breast cancer and their care givers. Cancer and its treatment represent major stressors requiring that patients make multiple adaptations. Among patients diagnosed with breast cancer, 5%‐10% had primary metastasis, and 20%‐30% would develop into metastatic disease. Basically having cancer doesn't make your death anymore certain than anyone else. Metastatic breast cancer is still considered an incurable process, but the division into molecular subtypes has led to improvements in care and facilitated a personalized management approach. Good on you for doing the research. The unknown is killing me. I also hate "pink". Chemotherapy plays an important role in the management of metastatic breast cancer. I'm sorry to hear about her diagnosis. Can cancer be detected in a blood test? DNA was extracted from 3831 consecutive MBCs: 1237 (ER pos /HER2 neg), 1953 ER neg /HER2 amp, and 641 triple‐negative breast cancer … Everything helps. Chemoresistance, the major obstacle in breast cancer chemotherapy, results in unnecessary chemotherapy and wasting of medical resources. Reddit. She has never had cancer before nor did she experience any symptoms. I can't tell you how many of my (very, very loving) friends and family have done none. They just don't know much yet. The unfortunate reality is that cancer does not always have a clear cause, sometimes it just happens for no good reason - even in young people (I was only 23 when diagnosed). Someone I know under 30 has been diagnosed with metastatic breast cancer. Reddit; Wechat; Abstract. They tend to have a lot of experience with sick people, and maybe they could give you a better understanding of just what to expect from here. Reddit; Wechat; Abstract. I want to have more faith that it might be ok. Tldr: A recent Contrast CT scan led to the incidental discovery in of liver and breast masses. That she is confused, not wanting to eat, can't function well on her own, and sleeps so much, all tend to be signs that someone doesn't have much longer to live, especially without treatment. My absentee father spent the majority of his time working hours away, and only coming home on weekends to clean the pool and see his friends. I don't want to sound smug). Yes. Press question mark to learn the rest of the keyboard shortcuts, breast cancer 2015. cholangiocarcinoma 2019. Caregiver. What is certain is the treatment - surgery, chemo, radiation. You may feel angry, scared, stressed, outraged, and depressed. There is nothing that she did that caused this a terrible disease. The most common treatments for metastatic breast cancer in any location (bone, brain, lung, or liver) are systemic medications, which … Trying to cope with the diagnoses, and the harsh reality of losing my mom before she gets to see me get married or have children is crushing, but the unknown of what to look for, when to put her in hospice, and who to talk to makes it much worse. 1 Metastatic breast cancer (MBC) remains an incurable disease with an estimated 5‐year survival of only 25%. Blood tests don't detect the cancer but sometimes advanced cancer can cause regular tests to be a bit off. Someone I know under 30 has been diagnosed with metastatic breast cancer. Dr. Lisa Flaum shares information on recently approved treatment options and the role of genetic markers in accessing targeted therapy. ctDNA analysis was performed in 37 HER2‐positive metastatic breast cancer patients treated with pyrotinib. None of her doctors will give us a time frame, but my research shows that that cancer in the lining of her brain is an end-stage progression, and we most likely will not see more than a year. Holley Kitchen is the “cancer lifer” whose June 4, 2015 video about what it’s like to live with metastatic breast cancer that went viral on Facebook and other media outlets. Major illness has a way of overturning your life in an instant even if it isn't you that is sick. She tends to refuse help from most doctors, or at least, the preventative care required to avoid problems from getting worse. There isn't one type of cancer. I'm so confused and so worried about her family. Background. I’m hormone positive and her2-, and it’s invasive ductal carcinoma. Close. Reddit; Wechat; Abstract. It was a shock diagnosis, but not really at the same time. Sometimes, oncologists can be pretty aggressive about wanting to treat people with cancer, because they want to give their patients the best chance at living. This sucks. Many patients now live 10 years or more after a metastatic diagnosis. If the cancer is hormone related then the pill may have increased the risk of cancer. This reddit is for the discussion of cancer, cancer related news, stories of survival, stories of loss and everything else associated with the disease. I would love to get a second opinion also, but she isn't too interested in seeing more doctors which makes it so hard. I think you are right to try to be realistic. 9. You're right, it's rare, and it's worrisome. Single‐agent sequential chemotherapy with anthracycline or taxane has remained the cornerstone of treatment for many years. Hi! But can she have a long and normal life? A life-prolonging drug is being fully funded for New Zealanders with advanced (metastatic) breast cancer, saving patients thousands of dollars and ultimately giving them more time. Reddit can't know if it's cancer or not. In recent days, she is very forgetful and confused, she has lost over 60 pounds, she sleeps 12-18 hours a day, gets sick after most meals or snacks, and is so weak she can barely make it up the stairs. 4, 5 Such time costs can be substantial, with a previous study estimating 270 hours spent on breast cancer‐related care in the final year of life. New agents for the palliative treatment of metastatic breast cancer have emerged in the 1990s. I have limited support from my brother, as he is busy co-parenting with his ex-wife and working full-time as a Police Officer during a global pandemic. It’s in both breasts. In terms of treatment options, the oncologists are not being aggressive really. Metastatic breast cancer. Sending you all my love and vibes. She even got a check up a few months ago with an all clear. As you mentioned, there is no cure for metastatic breast cancer. AMA. So if breast cancer spreads to the bone, the metastatic tumor in the bone is made up of breast cancer cells, not bone cells. In 2009 I was diagnosed with Stage II breast cancer. Background. I firmly believe the only value in those statistics is weighing up whether to take a drug versus its side effects. I'm a woman living with Terminal, Metastatic Breast Cancer to the liver. Tumor heterogeneity was associated with treatment outcome of metastatic cancers but few studies have examined whether tumor heterogeneity in circulating tumor DNA (ctDNA) can be used to predict treatment outcome. Cassidy here. Has the palliative care doctor given any opinion on how he thinks your mom is doing? The last five months have been nothing short of life-changing. BRCA2, Rad Onc / Palliative Care - comments are not medical advice. Reddit; Wechat; Abstract. And there's no guarantee it will help. That week was littered with scans, new doctors, and hours of driving to Newmarket to begin talking treatment plan. I'm sorry to hear about your mother. It's best not to think about the future at this point, and to focus on making it through treatment and trying to get as much joy and laughter out of each day as you possibly can. The conventional markers of HER-2, ER, and PR also guide management in the metastatic setting. With metastatic breast cancer, the median survival rate is only two to three years, Mertz said. Chemo doesn't usually come with specific dietary restrictions, it's more about just eating whatever you feel like you can stomach at the time. The anthracyclines (doxorubicin, epirubicin) and the taxanes (paclitaxel, docetaxel) are considered the most active agents for patients with advanced breast cancer. Had no previous cancer diagnosis. Well this week she was having really bad pain … Press J to jump to the feed. It was a shock diagnosis, but not really at the same time. Plus they don't give you ANY insight into how an individual cancer will react. Thank you for the well wishes, everything helps. If detected early, breast cancer can be controlled. Reddit; Wechat; Abstract. EDIT: Also, you can drink soda while you're on chemo. Metastatic breast cancer occurs when breast cancer cells detach from the original tumor and travel through the lymphatic system or the blood to other parts of the body. Metastatic breast cancer is the most frequent cause of cancer death for women worldwide. Get a second opinion if you can to see if there are treatment... With Terminal, metastatic breast cancer 4B Lymphoma - Transformed NHLPL/DLBCL much as feed it and hydromorph. Check up a few months ago with an all clear, always proud, proud. Recently moved to Quebec with my boyfriend and mother in tow 'm so confused and so worried her... 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